The research conducted in 22 countries clear that most of the countries provide a very limited statistical data specifically related to children with intellectual disabilities. Nevertheless, disaggregated data for children with intellectual disabilities is essential information in the attempt to undertake a real implementation and monitoring of their rights.
A lot of good practices, pilot projects and training programmes were recorded. Nevertheless, systemic changes are still missing.
Authorities thus need to take responsibilities for multiplying these experiences to avoid relying only on NGOs projects and initiatives. Both the UN Convention on the Rights of the Child and the Convention on the Rights of Persons with Disabilities recognise the right of the child to live in the community and in family type setting.
However, families still do not receive adequate support, while in many countries; institutional care remains a response for families and children at risk. Community based services exist, but they do not necessarily benefit to all children with intellectual disabilities and the most vulnerable families.
Despite the recognition of the vulnerability of children with intellectual disabilities, the available supports (early prevention, community based services, financial benefits, psychological support) for families are still insufficient.