In this article we explore the limits of care for severely disabled and seriously ill children. We put the questions about manipulation with point of the death and we are looking about possibilities of refusing of the therapy by parent or by child.
We find a solution in discussion about ordinary and extraordinary means. Extraordinary means can be refused.
However, it means that we as parents, child or doctors need not to do everything pro saving of the life of the child. We put a question, whether we know genuine wishes of the parents of these children.