Abstract
It is estimated that there are 20,000 people with rare diseases in the Czech Republic. From a pathophysiological point of view, these diseases may not have anything in common, but from the point of view of care management they are united by many - late diagnosis, information deficit in both the lay and professional public, cost of therapy and especially lack of attention.
Therefore, the unique date of February 29 was chosen as the Day of Rare Diseases.