Publication at Faculty of Humanities, Faculty of Arts |
2016
Abstract
In this qualitative study we observed the effects of care burden in the family system, how it changes relationships in the family and how much the care burden and duties are divided among the family members. Based on extensive semi-structured interviews there is a description of relationships and conflicts in the family system appearing during the caring about a person with dementia.
We've approached the topic from the family carer's point of view, while our respondents have had a direct, actual and long-term experience with the care at home. The main topics of the family care seemed to be: a voluntary autonomy, a shared care and sibling relationships.