Publication at Central Library of Charles University, Faculty of Education |
2017
Abstract
The contribution provides insight into the life of a family with a child suffering from a very rare Torielllo-Carey syndrome. The article deals in detail with the individual symptoms of this disease with respect to the fact that it is a unique case of its occurrence in the Czech Republic and also in Europe.
The authors focused on the effects of this rare disease on the boy's life and on the possibilities providing special pedagogical support and intervention to a child with this disability. Here is highlighted the value of mutual understanding between professionals and the family.