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Disease registries
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publication
A snapshot of European registries on Chronic Kidney Disease patients not on Kidney Replacement Therapy
2022 |
3. lékařská fakulta
publication
European chronic kidney disease registries for children not on kidney replacement therapy: tools for improving health systems and patient-centred outcomes
2023 |
2. lékařská fakulta
publication
Mapping the differences in care for 5,000 Spinal Muscular Atrophy patients, a survey of 24 national registries in North America, Australasia and Europe
2014 |
2. lékařská fakulta
publication
Electronic reporting of rare endocrine conditions within a clinical network: results from the EuRRECa project
2023 |
2. lékařská fakulta
publication
Pooling and expanding registries of familial hypercholesterolaemia to assess gaps in care and improve disease management and outcomes: Rationale and design of the global EAS Familial Hypercholesterolaemia Studies Collaboration
2016 |
1. lékařská fakulta
publication
Predictors of treatment switching in the Big Multiple Sclerosis Data Network
2023 |
1. lékařská fakulta
publication
European Cystic Fibrosis Society Standards of Care: Framework for the Cystic Fibrosis Centre
2014 |
2. lékařská fakulta
publication
Autosomal dominant tubulointerstitial kidney disease: more than just HNF1 beta
2022 |
1. lékařská fakulta
publication
Real-life LDL-C treatment goals achievement in patients with heterozygous familial hypercholesterolemia in the Czech Republic and Slovakia: Results of the PLANET registry
2018 |
1. lékařská fakulta
publication
Effects of Baseline Left Ventricular Hypertrophy and Decreased Renal Function on Cardiovascular and Renal Outcomes in Patients with Fabry Disease Treated with Agalsidase Alfa: A Fabry Outcome Survey Study
2020 |
Publikace bez příslušnosti k fakultě
publication
Global burden of 369 diseases and injuries in 204 countries and territories, 1990-2019: a systematic analysis for the Global Burden of Disease Study 2019
2020 |
2. lékařská fakulta